Sunday, March 3, 2013

Myla's Progress

It has definitely been an emotional week as far as Myla's progress goes...last time we checked in we mentioned a few upcoming appointments.  Last Thursday, we took Myla to "the" developmental specialist for the bay area and both Andy and I thought that it went terribly:(  The Doctor started off telling us we weren't allowed to interrupt and that we were supposed to treat the next hour as a test for Myla.  IT WAS AWFUL!  It felt like we were watching Myla fail time and time again for a whole hour...the Doctor moved so quickly from one test to another we don't feel like she even had a chance.  Despite the fact that the test was awful the outcome seemed to be the same.  The Doctor officially diagnosed her with a gross motor developmental delay.  She concluded that Myla is functioning physically at a 10 month old level and made an appointment for today (Tuesday) with a physical therapist in Walnut Creek.  Because the appointment was so last minute neither Andy nor I could get the day off so our amazing new babysitter (Rachel McDonald) who is a nurse awaiting her first job was able to take her and learn everything we needed to know.  The physical therapist today came up with the same information, Myla is physically functioning at a ten month old level.  She showed Rachel various exercises we can do with Myla to help her and told us to hold her less.

Andy and I are a little bit emotional about everything...the physical therapist said today (and another one mentioned) that part of the reason she's struggling could be related to the fact that she spent a lot of time in the johny jump up and the exersaucer.  The reasoning behind this is somewhat complicated but basically she gained too much confidence in the jumper and exersaucer so now she can't stand because she doesn't have the confidence or the muscle memory.  This is all obviously "fixable" but it's hard for Andy and I to face.  

Now we wait and see what Kaiser officially says before moving on to physical therapy and working on exercises we've been given at home.  We fully trust in God's plan and know that He's go us in His hands.  I can't help but think of the song, "Forever reign" which goes like this,

And Oh, I'm running to your arms, I'm running to your arms,
the richness of your love, will always be enough,
nothing compares to your embrace
light of the world forever reign.

It seems silly to be concerned, we understand, but saying the words "she's been diagnosed..." is difficult.  Admitting there is something wrong is hard and we want to take it all away.  So we're running to God's huge embrace.

Because I know you all love pictures...here are a couple:)



Ms. Sassy Pants on Valentine's Day before heading to school


Millie on V day playing around the house (she's standing!!!)

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